Cannabidiol (CBD) is the part of the cannabis plant that doesn’t get you “high” like the THC side of the plant. It is used, often successfully, for medical reasons and not for recreational purposes.
Out of the box, I want to state I am in no way endorsing legalization of recreational marijuana.
The number of parents who are asking for this non-recreational type of CBD oil for their severely epileptic children is growing by leaps and bounds as they seek help for their child.
This case in Indiana is particularly interesting and very close to me, as I worked at Riley Hospital when I was a student nurse and still have ties there.
Jade and Lehla Jerger, parents of Jaelah Jerger, live is Evansville, Indiana, my home state. Riley Hospital in Indianapolis and Indiana Child Protective Services (CPS) has attempted to take control of Jaelah’s care despite the fact that her parents have found CBD oil an effective way to control her debilitating severe seizures, often over 50 a day.
After a neurologist at Riley Children’s Hospital diagnosed her epilepsy and wanted to put Jaelah on KEPPRA, a common, but under-tested seizure medication, the parents began to research the best treatments for their daughter.
I would not want my child on a medication not recommended for children under 6 and can cause severe side effects like loss of hunger, renal failure, suicidal thoughts and infertility. Jaelah is only 19 months old. Read the package insert here.
No hospital or doctor has a right to try to usurp and control a child’s care when her parents seek a second opinion and are both competent and within the law!
Enter CBD Oil
Jade and Lehla Jerger found a qualified Chiropractic Neurologist and began treating Jaelah with CBD oil. CBD oil is extracted from industrial hemp, and is in no way psycho-active since it has almost no THC content – in the .003 percentage range. At the lowest dosage of CBD oil, the chiropractic Neurologist had success in reducing seizures from 50+ a day to 4 or less a day!
The sale of industrial hemp is legal in all 50 states, and as I mentioned before, CBD oil derived from industrial hemp (very different from marijuana) is also legal.
The Washington Post reports the medical demand is growing steadily due to “dozens of studies that have found evidence the compound can treat epilepsy as well as a range of other illnesses, including anxiety, schizophrenia, heart disease and cancer.”
Charlotte Figi is the first child to try CBD oil medically…
Wow, another very interesting case: Mum of teen boy ‘saved by cannabis’ reveals drug DIDN’T cure his cancer – but did stop him dying: Callie Blackwell’s son Deryn was sent to a hospice shortly after his 14th birthday to live out his final few days – now, he’s a happy and healthy 17-year-old.
Parents Are Being Sidelined
This situation has hit all the wrong buttons in me as a parent and mother. I have always treated our family with well-researched and no-side-effect natural means. I’ve even shared the contents of my no-side-effect medicine cabinet. My goal is to keep my family out of the doctor’s office and hospital. I saw a lot in my 20 years as an RN. This blog is, in part, written to help parents to make clear-minded decisions based on current science.
I have reported on other stories in the past where competent parents have had the medical authorities attempt to sideline them from being a part of their child’s care.
Progress in this case is being made. This from the Jerger’s Facebook page today:
“Dr Puri just left! We have some good news!
He is allowing us to continue with the Charlotte’s Web CBD oil (named after Charlotte Sigi in the video) treatment, but he did increase her dosage to prevent seizures completely! She is no longer on KEPPRA!!!!
This is not a complete win in our situation, it was just a small battle. We are hoping that all the wrongs in this case will be righted and we will get #justiceforjaelah
Thank you to each and everyone one of you who shared our story and have supported us so far. We love you!!!!“
WEVV Channel 44 News, Evansville journalist, Jeff Goldberg broke the story here. One of Evansville’s over 2,000 informed and thoughtful parents brought this to our attention yesterday, Sunday, September 24, 2017.
Indiana for Medical Freedom has also issued a press release on the Jerger’s situation:
“An epileptic Evansville toddler’s medical care was taken over by Indiana CPS last week over a dispute in medical treatment. The Jerger family seeks public support in reestablishing parental rights for their sick toddler, Jaelah, despite cooperating with their physician.
“Jade and Lehla Jerger, parents of Jaelah Jerger, say their daughter suffers from epilepsy and can have up to 100 seizures a day. KEPPRA, a common seizure medication was prescribed by a physician affiliated with Riley Children’s Hospital in Indianapolis, but according to Jaelah’s family, the medication did not reduce the number of daily seizures and, in fact, came with serious side effects that included trouble eating and sleeping and increased irritability. The family maintains they were cooperative with doctors and gave her the medication as prescribed.
“According to the manufacturer package insert page for KEPPRA, this medication is not FDA approved for children under the age of 6. Side effects can include: renal failure, infertility, suicidal thoughts and warns that those who worsen on this drug should cease taking it and talk to their physician.
“Desperate to give their daughter some relief, Jaelah’s parents decided to try CBD oil, a somewhat new alternative treatment for epilepsy, in addition to the medication prescribed by her physician. CBD oil is derived from the cannabis plant but is legal in the state of Indiana and does not require a prescription.
“Jaelah’s parents say her seizures decreased from 100 per day, down to around 2. Jaelah’s physician did not agree with this experimental treatment and called CPS, who removed Jergers’ rights to oversee their daughter’s medical care, citing medical neglect. Jaelah must submit to weekly tests to prove she is taking the prescribed medication. Noncompliance could result in Jaelah being removed from her home.
“Now the Jergers are fighting the state to resume medical decisions on Jaelah’s behalf. Now under state care, Jaelah is being forced to take a medication that may not be best for her condition.”
After the world watched Baby Charlie Gard forced to die, maybe more concerned parents are waking up to the fact that we need to fight back with public awareness such as GoFundMe pages, the help of local media and the courts. Seeing parents increasingly sidelined by the culture, I am convinced it is time to stand up for our parental rights!
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Thanks for reading!