Updated 2019
Do you have a long history of health issues with symptoms that change daily or monthly, but never go away? Think Lyme disease until proven otherwise.
A recent question I received:
“I am a 38 year old mother of 4, and my life hasn’t been normal since 2007. I used to run 3-4 times a week and felt very fit. All of a sudden, I developed inability to multi-task, painful joints, vertigo, severe headaches and what I would describe as chronic fatigue. I’ve gone to numerous doctors for a whole string of symptoms including night sweats, double vision, brain fog, and unexplained rashes. Last week, my sister told me to look up “Lyme Disease,” and I did. It explained my life! I called a doctor friend, but he said Lyme isn’t common in this area, so I have no idea what to do now. Can you give me some direction?” ~J.T.
My answer: I have long had an interest in Lyme Disease because of friends battling it, and I have been exploring this in my own life and that of my family, but I am not an expert or a doctor.
That said, these are some things I have learned that I can share for you to explore:
Who Do You See for Lyme Disease?
There are many Lyme-literate medical doctors (LLMDs) in the U.S., and here are several people who educate: Dr. Lee Cowden, Dr. Joseph Burrascano, Dr. Joseph Jemsek, and Stephen Harrod Buhner. Each has a very different perspective. The controversy surrounding Lyme is ongoing.
What is Lyme Disease?
Lyme disease is often misdiagnosed or dismissed. A common theme is chronic pain. Some would say Lyme disease mimics:
- multiple sclerosis (MS)
- Rheumatoid arthritis (RA)
- Parkinson’s
- ALS (Lou Gehrig’s Disease
- Alzheimer’s
- fibromyalgia
- Chronic Fatigue Syndrome
- and even some cases of epilepsy
But I would say it is the actual cause – so it’s a puzzle.
That’s awful, because if you’re diagnosed incorrectly, opportunity is missed and precious antimicrobials needed to kill Lyme bugs are never taken, leading to potentially catastrophic problems. Not to be dramatic or anything- just ask a Lyme sufferer!
According to my research, no two patients have the same symptoms, which come and go. Common complaints are:
- poor memory
- exhaustion
- brain fog
- loss of balance
- insomnia
- yeast infections
- twitches
- numbness in extremities
- loss of muscle strength
- anxiety
- back/neck pain
- neuropathy and tingling in extremities
- headaches
- dizziness
- muscle/joint pain
- cramps
- bladder or testicular pain
- urethritis
- buzzing
- depression and mood swings
- sound sensitivity
- eye or ear pain
- and irregular heartbeat
And there’s so much more.
Are Mosquitoes Vectors For Lyme Disease?
In 2015, I was not able to find anything from the CDC supporting that mosquitoes were a vector for Lyme at all – just ticks! The Centers for Disease Control and Prevention (CDC) website STILL says that “there is no credible evidence that Lyme disease can be transmitted through air, food, water, or from the bites of mosquitoes, flies, fleas, or lice.” (source)
But, this May, 2018, the CDC reported that illnesses from mosquito, tick and flea bites have tripled in the U.S., with more than 640,000 cases reported during the 13 years from 2004 through 2016. “Zika, West Nile, Lyme – a growing list of diseases caused by the bite of an infected mosquito, tick, or flea – have confronted the U.S. in recent years, making a lot of people sick.” (source)
Confusing?
I fully believe Lyme is also transmitted by mosquitoes and other biting insects. The Virginia Department of Health would also agree. Anytime blood is exchanged – no matter how microscopic – you can transmit the co-infection. Same with kissing or having sex with someone who has Lyme. Babies contact it from mother while in utero. Often it remains dormant for months to many years.
“For the life of a creature is in the blood…” ~Leviticus 17:11
Now What?
If you have a long history of health issues, with symptoms that change daily or monthly, but never go away, I’d seriously consider Lyme testing by a lab that specializes in it, for example Igenex, Fry, or Advance Labs. Inaccurate results by regular labs may produce a false negative, so you think you don’t have Lyme when you do. Years of confusion and grief may follow. The extra expense seems worth it.
Lyme infection is not just caused by Borrelia burgdorferi, but it is a co-infection of many organisms living symbiotically such as:
- Babesia
- Rickettsia
- Bartonella
- Ehrlichia
- Cytomegalovirus (CMV
- Epstein-Barr virus (EBV)
There are many more behind the many and varied symptoms.The recommended labs above are best at detecting these bugs.
Under Our Skin – Horror to Hope
I’d recommend watching Under Our Skin 1 (2009) and follow it up with the trailer of Under Our Skin 2 (2014). Most likely, if you have Lyme these videos will clear up much of the mystery and help you make sense of it.
What We Are Doing
Our family started with Monolaurin, Bio-Fibrin, and Banderol. (Update: we stopped those because they were only partially helpful and hard to regulate). DO NOT use Bio-Fibrin or Banderol without guidance from an alternative/integrative practitioner.
We changed over to targeted homeopathics (expensive) for a number of year; they differ for each person based on the uniqueness of that individual. Look for a functional doctor or a naturopath who uses an electro-dermal scanner to read frequencies in your body and then give the corresponding remedy. Homeopathic modalities work very effectively to correct the pathologies by disrupting the pathological frequencies and detoxing the problem.
I know that is vague, but it is accurate.
Update: Finally, we finally found a simple spray, Advanced TRS (click and scroll down), and that has put a stop to all our Lyme (and then prions) symptoms for once and for all. We saw a diminishing of symptoms and a full return to vigor in 5 months, but we had been working on it for years. Let me tell you how by letting me know in the comments, and I will email you back.
The Rife machine is an excellent modality to use, but it is only one.
Frequency of Life: Royal Rife, Nikola Tesla & Lessons We Can Learn
Resources for Lyme Disease
Suzy Cohen, author of this article writes extensively about Lymes.
Visit ilads.org for more Lyme information.
Erin
I am not sure why some doctors are reluctant to test for lymes disease. Living where I do I know several people who had it. Most of the time it took several trips to the clinic and persistence to get the test. One had her toddler sent away even with the bullseye rash. She pushed and he was treated.
I love a break from winter but pray for protection against this for my family during the warmer months.
Jacqueline
It is challenging to know how to stay healthy. There is much power in knowledge.
Erica Ricky Kennedy
I would suggest that you and the reader consider following Suzy Cohen (America’s Favorite Pharmacist) on line and perhaps consider some of her books. She has battled Lyme/Babesia with her husband for many years and has many good/natural suggestions for assisting in its treatment.
Jacqueline
Thank you, Erica! I love Suzy Cohen and have learned from her as well as others. The story of her husband’s battle against Lyme’s is amazing!
Here is her website: http://suzycohen.com/
Charlotte Moore
I shared this with several people. Thanks for the info.
BLESSINGS!!
Jacqueline
Thank you, Charlotte. Thank you for telling your friends…
I hate it that so many just think they have arthritis or one of the autoimmune diseases. I will be praying for your friends, too, now.. This is affecting our family, and I was very afraid when I didn’t know what it was. Now that I know what we are dealing with, that probably 85-90% of all of us have at least been exposed, and that there are concrete things one can do, it helps me to deal with it. God is so good in how we came to know about Lyme disease, too! He has lead us all the way and we feel His guidance!
Sending you warm hugs and praying for you right now! God bless you 🙂
Annette Wolf
I want you to know that I am sharing this post with a couple of different people we know. If they would consider this I wonder if they could be helped. What they have been diagnosed with has seemingly no hope. Thanks!
Jacqueline
Thank you, Annette! We are finding amazing relief from our Lyme’s, and our son was just told that he has no more detectable bacterial co-infections now. He is free of the symptoms he once had. We are all on our way and so thankful to god for His guidance! I’m praying for your friends!
Diane Dunn
Have you seen the website: http://www.iamchanged.com? Many have been healed from Lyme’s Disease through their ministry.
Jacqueline
Thanks, Diane!
I am going there now to learn more.
Many blessings, friend, and I appreciate you sharing this 🙂
katie
Praise the Lord 4 the insight He’s given u!
I was finally diagnosed last Nov. w/Lyme after 5 yrs. of thinking death was imminent…i was so very sick & misdiagnosed & told “in my head”….
I have 8 beautiful children, who have recently been tested w/Advanced lab & Igenex, as well as my husband, & many of them are coming up positive w/Lyme or co-infect.
Plz pray 4 us! & may the Lord cont. 2 use u 2 spread the truth & bring His Truth & healing to others!
Maranatha!!!!
Lam 3:22-23
Ps 27:13-14
Jacqueline
Aww… Katie! I will pray and am right now! How difficult it is, but I’m so thankful you are now dealing with it with knowledge and more understanding! Praise God for His tender mercies! When we seek and trust Him (as you know) He will show us what we need to do!
Are you watching the Quest For the Cure series on cancer? Many of the principles for good health are there for free!! https://go2.thetruthaboutcancer.com/global-quest/episode-1/?a_aid=56003a451662b
Blessings!
M.S.
J- Thank you for this useful information. We watched the movie Under Our Skin and it really opened our eyes. I feel I have been suffering from Lyme for the last 3 years, with no support or help from doctors.. After the general blood test a physician does, I got the same answer of ‘no lyme disease showed up’.. and Im still left with the same symptoms.. But this movie made me feel like I should pursue further testing.. You speak of 3 different options for tests.. What type of doctor would I go to, or how can I find out who in my area uses these other tests for Lyme testing? thank you for all your help.. M. S. Wisc-
Jacqueline
Hi, M.S.
This is a place to start looking for a Lyme-literate doctor: http://www.lymeresearchalliance.org/find_doctors.html
We actually saw the first spirochetes at a Amish practice where they had a DarkField screen to look at the blood and components. We saw spirochetes (with flagella) swimming in the plasma. We all started on Monolaurin and Bio-Fibrin (very slowly and gradually since the body can herx with all the die-off) as I mentioned in the post. We all began to (excuse me) have excessive stools as the co-infections were slowly killed off and we were tired as our bodies were fighting a war. We are MUCH better today – all 4 of us. I can actually work in the garden in the heat for 33-5 hours where before I was done in 1 hour! We also have an awesome naturopath and use homeopathics. We have our minds back and are so, so thankful!
I hope that helps! God bless you, friend!
Laurie Eckles
We just moved to Indiana from Oregon, where by the way I got to know your beautiful daughter. Congratulations on your new grandchild. I am wondering if you have any recommendations for a local doctor who specializes in celiac. My 9 year and I were diagnosed 1 year ago but she especially continuous to not feel well despite my best efforts to change diet. I would appreciate any direction. We are in Lafayette but not far from Indy. Thank you.
Jacqueline
Hello, Laurie, and WELCOME!! How neat that you know her! I just returned home 2 days ago from being with them for 9 days.
I apologize, but I am pretty not tuned into the traditional medical providers anymore. I will ask around (and be thinking), bc there are still some who are worthy of our trust.
I will email you with what I would do for celiac or for any gut related issues. You may want to go straight to a doctor, but this is a safe and effective correction that many be of interest to you!
Blessings, Jacqueline
Scarlett Wineland
Interested in TRS
Jacqueline
I will email you yet today, Scarlett! ~J
Julie
Hi Jacqueline,
Responding to your update. “We saw a diminishing of symptoms and a full return to vigor in 5 months.” Please email me to tell me how you did it.
Jacqueline
Julie, I am emailing you soon! ~Jacqueline
Laura
Thank you for this great article!
I confess to being confused at the end of the article. Can EBV be caused by an insect bite? It seems to be one of the co-infections. I’m confused how it fits in. It was only when I was diagnosed with Lyme, that I linked my previously undiagnosed bout with EBV years ago. How does EBV relate to Lyme Disease?
Thanks!
Jacqueline
Hi, Laura!
The word “co-infection” is often used as an umbrella term that includes not only co-infections transmitted along with Lyme, but also opportunistic infections that prey on the weakened immunity of Lyme patients.
A subset of opportunistic infections called “re-activated opportunistic infections” consists of latent infections already present in the host, which wait for a chance to re-activate. One of these, the Epstein-Barr virus (EBV), can have a significant impact on the health of people with Lyme disease.
It is already in the body (an earlier Infection with EBV frequently happens during childhood. EBV is sometimes referred to as mononucleosis (mono), also known as “kissing disease.”) Because the symptoms of childhood EBV are usually mild and/or easily confused with those of the common cold or flu, many parents don’t realize their kids have been infected with EBV., but is reactivated when the immune system goes down.
That is my understanding.
I hope that helps! ~J
Kay
Thank you for the info. You said I could ask for more info on TRS spray? I have a teen with lyme…looking for answers. Thank you.
Jacqueline
Hi, Kay! I will email you now. ~Jacque