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History Of Chronic Pain? Think Lyme Disease

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History Of Chronic Pain? Think Lyme Disease, epidemic, researchers, physicians, patients, hope, HIV, breast cancer, Lyme disease crisis, all in your head, CDC, confusion, video, mystery, disclaimer, grief, Igenex Lab, Fry Lab, Advance Labs, bulls-eye rash, painful joints, prostatitis, Lyme-literate medical doctors, LLMDs, Dr. Lee Cowden, Dr. Joseph Burrascano, Dr. Joseph Jemsek, Stephen Harrod Buhner, anti-microbials, suffering, pets, in utero, chronic pain, mimic, multiple sclerosis, Rheumatoid arthritis, Parkinson’s, ALS, Alzheimer’s, fibromyalgia, Chronic Fatigue Syndrome, epilepsy, symptoms, which come and go: poor memory, exhaustion, brain fog, loss of balance, insomnia, yeast infections, twitches, numbness in extremities, loss of muscle strength, anxiety, back/neck pain, neuropathy, migraines, dizziness, muscle/joint pain, cramps, bladder or testicular pain, urethritis, buzzing, depression, mood swings, sound sensitivity, eye or ear pain, irregular heartbeat, Borrelia burgdorferi, bacterial infection, co-infection, Under Our Skin 1, Babesia, Rickettsia, Bartonella, Ehrlichia, or Epstein-Barr virus, spirochete, diagnosis, misdiagnosis, blood, mosquito, ticks, deer tick, wood tick, woods, grass, testing labs,

Do you have a long history of health issues with symptoms that change daily or monthly, but never go away? Think Lyme disease until proven otherwise. 

A recent question I received:

“I am a 38 year old mother of 4, and my life hasn’t been normal since 2007. I used to run 3-4 times a week and felt very fit.  All of a sudden, I developed inability to multi-task, painful joints, vertigo, severe headaches and what I would describe as chronic fatigue.  I’ve gone to numerous doctors for a whole string of symptoms including night sweats, double vision, brain fog, and unexplained rashes.  Last week, my sister told me to look up “Lyme Disease,” and I did. It explained my life! I called a doctor friend, but he said Lyme isn’t common in this area, so I have no idea what to do now. Can you give me some direction?” ~J.T.

My answer: I have long had an interest in Lyme Disease because of friends battling it, and I have been exploring this in my own life and that of my family, but I am not an expert or a doctor. That said, these are some things I have learned that I can share for you to explore:

Who?

There are many Lyme-literate medical doctors (LLMDs) in the U.S., and here are several people who educate: Dr. Lee Cowden, Dr. Joseph Burrascano, Dr. Joseph Jemsek, and Stephen Harrod Buhner. Each has a very different perspective. The controversy surrounding Lyme is ongoing.

What?

Lyme disease is often misdiagnosed or dismissed. A common theme is chronic pain. It can mimic multiple sclerosis, Rheumatoid arthritis, Parkinson’s, ALS, Alzheimer’s, fibromyalgia, Chronic Fatigue Syndrome, and epilepsy – so it’s a puzzle. That’s awful, because if you’re diagnosed incorrectly, opportunity is missed and precious anti-microbials needed to kill Lyme bugs are never taken, leading to potentially catastrophic problems. Not to be dramatic or anything- just ask a Lyme sufferer!

According to my research, no two patients have the same symptoms, which come and go. Common complaints are poor memory, exhaustion, brain fog, loss of balance, insomnia, yeast infections, twitches, numbness in extremities, loss of muscle strength, anxiety, back/neck pain, neuropathy and tingling in extremities, headaches, dizziness, muscle/joint pain, cramps, bladder or testicular pain, urethritis, buzzing, depression and mood swings, sound sensitivity, eye or ear pain, and irregular heartbeat. And there’s so much more.

Are Mosquitoes Vectors For Lyme Disease?

You hear about a tick bite followed by a bull’s-eye rash. That rash only occurs in 40 percent of people, and most won’t ever see a tick since they can be as small as the point of a very small pin. Although you won’t find much to back this up online, I fully believe Lyme is also transmitted by mosquitoes and other biting insects. The Virginia Department of Health would also agree. Anytime blood is exchanged – no matter how microscopic – you can transmit the co-infection. Same with kissing or having sex with someone who has Lyme. Babies contact it from mother while in utero. Often it remains dormant for months to many years.

“For the life of a creature is in the blood…” ~Leviticus 17:11

Now What?

If you have a long history of health issues, with symptoms that change daily or monthly, but never go away, I’d seriously consider Lyme testing by a lab that specializes in it, for example Igenex, Fry, or Advance Labs. Inaccurate results by regular labs may produce a false negative, so you think you don’t have Lyme when you do. Years of confusion and grief may follow. The extra expense seems worth it.

Lyme infection is not just caused by Borrelia burgdorferi, but it is a co-infection of many organisms such as Babesia, Rickettsia, Bartonella, Ehrlichia, Cytomegalo virus and Epstein-Barr virus behind the many and varied symptoms. The recommended labs above are better at detecting these bugs.  Finally, the “CD57” blood test offers a clue, and tracks your progress, and I recommend LabCorp for that particular test.

Under Our Skin – Horror to Hope

I’d recommend watching Under Our Skin 1 (2009) and follow it up with the trailer of Under Our Skin 2 (2014). Most likely, if you have Lyme’s these videos will clear up much of the mystery and help you make sense of it.

What We Are Doing

Our family has chosen to take Monolaurin, Bio-Fibrin, and Banderol as part of a long term treatment and maintenance. We also have a naturopath who uses a variety of homeopathic remedies with good success. We have seen a diminishing of symptoms and a return to vigor.

Resources

Suzy Cohen, author of this article writes extensively about Lymes.
Visit ilads.org for more Lyme information.

Find a Lyme-Literate Doctor

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History Of Chronic Pain? Think Lyme Disease, epidemic, researchers, physicians, patients, hope, HIV, breast cancer, Lyme disease crisis, all in your head, CDC, confusion, video, mystery, disclaimer, grief, Igenex Lab, Fry Lab, Advance Labs, bulls-eye rash, painful joints, prostatitis, Lyme-literate medical doctors, LLMDs, Dr. Lee Cowden, Dr. Joseph Burrascano, Dr. Joseph Jemsek, Stephen Harrod Buhner, anti-microbials, suffering, pets, in utero, chronic pain, mimic, multiple sclerosis, Rheumatoid arthritis, Parkinson’s, ALS, Alzheimer’s, fibromyalgia, Chronic Fatigue Syndrome, epilepsy, symptoms, which come and go: poor memory, exhaustion, brain fog, loss of balance, insomnia, yeast infections, twitches, numbness in extremities, loss of muscle strength, anxiety, back/neck pain, neuropathy, migraines, dizziness, muscle/joint pain, cramps, bladder or testicular pain, urethritis, buzzing, depression, mood swings, sound sensitivity, eye or ear pain, irregular heartbeat, Borrelia burgdorferi, bacterial infection, co-infection, Under Our Skin 1, Babesia, Rickettsia, Bartonella, Ehrlichia, or Epstein-Barr virus, spirochete, diagnosis, misdiagnosis, blood, mosquito, ticks, deer tick, wood tick, woods, grass, testing labs,

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Thanks for reading!

Jacqueline
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Comments

  1. I am not sure why some doctors are reluctant to test for lymes disease. Living where I do I know several people who had it. Most of the time it took several trips to the clinic and persistence to get the test. One had her toddler sent away even with the bullseye rash. She pushed and he was treated.

    I love a break from winter but pray for protection against this for my family during the warmer months.

    • It is challenging to know how to stay healthy. There is much power in knowledge.

  2. I would suggest that you and the reader consider following Suzy Cohen (America’s Favorite Pharmacist) on line and perhaps consider some of her books. She has battled Lyme/Babesia with her husband for many years and has many good/natural suggestions for assisting in its treatment.

    • Thank you, Erica! I love Suzy Cohen and have learned from her as well as others. The story of her husband’s battle against Lyme’s is amazing!
      Here is her website: http://suzycohen.com/

    • Thank you, Charlotte. Thank you for telling your friends…
      I hate it that so many just think they have arthritis or one of the autoimmune diseases. I will be praying for your friends, too, now.. This is affecting our family, and I was very afraid when I didn’t know what it was. Now that I know what we are dealing with, that probably 85-90% of all of us have at least been exposed, and that there are concrete things one can do, it helps me to deal with it. God is so good in how we came to know about Lyme disease, too! He has lead us all the way and we feel His guidance!
      Sending you warm hugs and praying for you right now! God bless you 🙂

  4. I want you to know that I am sharing this post with a couple of different people we know. If they would consider this I wonder if they could be helped. What they have been diagnosed with has seemingly no hope. Thanks!

    • Thank you, Annette! We are finding amazing relief from our Lyme’s, and our son was just told that he has no more detectable bacterial co-infections now. He is free of the symptoms he once had. We are all on our way and so thankful to god for His guidance! I’m praying for your friends!

    • Thanks, Diane!
      I am going there now to learn more.
      Many blessings, friend, and I appreciate you sharing this 🙂

  6. Praise the Lord 4 the insight He’s given u!
    I was finally diagnosed last Nov. w/Lyme after 5 yrs. of thinking death was imminent…i was so very sick & misdiagnosed & told “in my head”….
    I have 8 beautiful children, who have recently been tested w/Advanced lab & Igenex, as well as my husband, & many of them are coming up positive w/Lyme or co-infect.
    Plz pray 4 us! & may the Lord cont. 2 use u 2 spread the truth & bring His Truth & healing to others!
    Maranatha!!!!
    Lam 3:22-23
    Ps 27:13-14

  7. J- Thank you for this useful information. We watched the movie Under Our Skin and it really opened our eyes. I feel I have been suffering from Lyme for the last 3 years, with no support or help from doctors.. After the general blood test a physician does, I got the same answer of ‘no lyme disease showed up’.. and Im still left with the same symptoms.. But this movie made me feel like I should pursue further testing.. You speak of 3 different options for tests.. What type of doctor would I go to, or how can I find out who in my area uses these other tests for Lyme testing? thank you for all your help.. M. S. Wisc-

    • Hi, M.S.
      This is a place to start looking for a Lyme-literate doctor: http://www.lymeresearchalliance.org/find_doctors.html
      We actually saw the first spirochetes at a Amish practice where they had a DarkField screen to look at the blood and components. We saw spirochetes (with flagella) swimming in the plasma. We all started on Monolaurin and Bio-Fibrin (very slowly and gradually since the body can herx with all the die-off) as I mentioned in the post. We all began to (excuse me) have excessive stools as the co-infections were slowly killed off and we were tired as our bodies were fighting a war. We are MUCH better today – all 4 of us. I can actually work in the garden in the heat for 33-5 hours where before I was done in 1 hour! We also have an awesome naturopath and use homeopathics. We have our minds back and are so, so thankful!
      I hope that helps! God bless you, friend!

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